What to Say when you Don't know What to Say

  •  Say nothing at all. Sometimes a lot of help is…well, too much. Particularly in the early days of a RAD diagnosis, there is a lot of confusion and chaos as decisions are made about what is best for the child and the family going forward. And with RAD being so unknown, many well-meaning friends and family can offer a lot of unsolicited advice. Being the friend who offers to talk about football, music, cooking, books or anything that reminds us of the happy things in life can be invaluable. Or maybe offering to just come and sit in the quiet. You have no idea how amazing quiet can be.
  • Fall back on a heartfelt cliché. Here’s the honest truth, not a fan of this one. Anyone who’s ever been in my life knows I hate birthday cards that rhyme so naturally clichés wouldn’t work for me either. But in a pinch, they work. A sincere, “I’m sorry for what you’re going through,” can go a long way for tired, sad parents. Don’t be afraid to reach out even if that’s the most you’ve got to say.
  • Acknowledge specific pain. Parents of children with RAD didn’t ask for this. And they didn’t cause this. And neither did their child. They are dealing with the results of either early abuse or trauma prior to the child’s adoption or early medical issues which prohibited infant bonding. But quite possibly the behaviors their child exhibits may cause shame as if they should be “better parents” and that they should be embarrassed over how their children are acting. This pain over feeling this way about their own children can be overwhelming. Listening to your friend or loved one and helping them take away its power will help it dissipate. 
  • Open the door to conversation. When a family has a child with any kind of special needs the instinct is to hide away. It’s just easier. So as a friend or family member, one of the nicest things is to keep them in the light. Don’t let them go down the rabbit hole of being consumed by the child or crisis of the moment. Giving the opportunity to talk of successes or accomplishments will help keep the balance and remind them that it’s not all chaos and disaster. 
  • Say (or text), “Dinner is on your doorstep”. So not everyone is a social butterfly. Some people would rather pull off their fingernails than initiate a conversation. If this sounds like you, but you’d still like to find a way to help out those families with a child with RAD, consider trading words for deeds. Taking a meal is a great option. If you have children of a similar age, offer to take the non-RAD kids for a movie or overnight. If you are a neighbor, shovel the walk when it snows. These may seem like small efforts but you have no idea how much relief they bring a family who is in crisis mode 24/7.
  • I’d love to hear other ideas you may have about what has helped you when you’ve needed it most. When you’ve got a child with RAD it can feel very isolating because the disorder is not very well understood. Thanks for reaching out. We love you friends and family!  ]]>

    A New Blog is Near!

  • Self-care
  • Education
  • Family
  • Well…everything else!
  • With these in mind, I have plans for four posts a week in the categories of:
    • All About Me Monday (self-care, balance)
    • Teacher Tuesday (Education, teacher information, homework ideas)
    • Whatever Wednesday (This will be topical information based on the week’s news, feedback from readers, information I get that I want to share, personal stories)
    • Family Friday (Marriage, siblings, mealtime, discipline)
    I would love your thoughts and ideas of other topics you might like to see. I will also start offering takeaways for teachers and parents as soon as I get rolling with doing four blogs a week! Whew! As always, thank you all for your support as I set off on this new adventure. It is truly a labor of love and I feel you cheering me on! Peace, Shannon  ]]>

    National Adoption Day

    eb944b59ce468f8c17c8d401a05c09d1Today is National Adoption Day. The pinnacle of National Adoption Month. As you may have (or may not have) noticed I have been on a little hiatus as I have been working on retooling the site. The ultimate goal will be to create a resource for other families like mine with children with Reactive Attachment Disorder.

    But back to today. The purpose of this day and month like awareness days/months for every other issue out there (World Toilet Day is tomorrow!) is to bring attention and hopefully get folks to consider action. Many cities across the county clear court calendars to hold finalization ceremonies for adoptions which can normally have a long wait. In 2016, over 687,000 children spent time in foster care and the average time in the system is two years. The average age of a child entering the system is seven. Of those in foster care, more than 20,000 aged out, meaning that at age 18 they were released from the system with no permanent home or support. On any given day, more than 438,000 are in foster care.

    Making the decision to adopt is not at all easy. For many it comes at the end of a painstaking journey of infertility. Which is what it was for us. Seven long years of heartbreak and loss and frustration. Friends and family who mean well but don’t know what to say. Baby showers and Mother’s Days going by again and again as horrible reminders of what was being denied to me. 

    Agreeing to move to adoption felt like being broken. Something God had built me for that everyone else my age was doing (and every 16-year-old on Jerry Springer) so easily and I had failed. It just didn’t seem like I could love and parent an adopted child the same as my own…boy was I about to get schooled.

    So we moved ahead. Three choices:

    • Private Infant
    • Foster Care System
    • International

    I couldn’t get my brain around a private adoption. The idea of getting a newborn was appealing but meeting the birth mother and at the time they were mostly open adoptions (a relationship with the birth mother was maintained, she had visitation, got photos, letters, etc.) was difficult for me. I could not get past feeling like I would just be a long-term babysitter.

    After attending classes about adopting from the foster care system, August’s dad was not comfortable with that option. The classes paint the worst possible scenario to show just how damaged children in the foster care system can become from repeated placements, attempts at reunification, abuse and neglect that got them removed in the first place and more. He did not believe he was ready to deal with that kind of trauma…again, little did we know what we were about to face.

    So international it was. Russia was picked because it was a country we’d probably never vacation to and because the child would most likely look somewhat like us so we wouldn’t automatically have to explain the adoption story every time we walked through the door. Of course we did, and August by the time he could speak in full sentences was introducing himself as, “Hi, I’m August, I’m from Russia.” So any attempt at secrecy was lost.

    Previous posts have obviously revealed that parenting my adopted child has been anything but a walk in the park. It has been the hardest thing I could have ever imagined. Nothing the foster care classes dreamed up came even close to what I’ve dealt with. This adorable round-faced stranger who spoke no English was placed in our care to raise and love for the rest of his life. This neglected, abused, damaged, traumatized child who would reject all efforts to care for and love him and instead grow up hardened and controlling and impulsive leading to such a difficult life.

    Would I change anything? Of course not. I am August’s mother. It is my greatest blessing. From the outside I am sure it is hard for others to see how the joys have so very far outweighed the trials. I am the proud adoptive mom of a beautiful, sweet boy. His name is August Mikhailovich Prokhorov, now August William Giles. He did not grow under my heart, but in it.

    If you are an adoptive parent or are adopted or know someone who is, celebrate this day and month. And please share your adoption stories…I love them!

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    The Future

    “When the past no longer illuminates the future, the spirit walks in darkness.” -Alexis de Tocqueville

    Parents of children with Reactive Attachment Disorder are no different. They have the same dreams for their children. Before they receive a diagnosis there’s no thought that the future might not include everything they are dreaming of. After the diagnosis, and as the reality sets in, the ideas of the future start to take on a very different view. What kind of therapy will my child need? Will my child be able to be in regular classrooms? Will my child be able to continue living at home? Will we have a relationship as our child becomes an adult? Will our child be able to heal? All of these questions and so many more have gone through my head over the years with August. Because of his violent and volatile behavior, I can add some even scarier thoughts. Is this the night the sheriff shows up to tell me he’s been killed? Will he get angry enough to physically harm me? Will I get angry enough to physically harm him? Will time in prison make a difference or make him a better criminal? I know as most parents do that at some point we have to let go and know that we have done all that we can do. What our children become is at some point out of our control. I have been watching on Facebook this week as many of my friends are moving their children to college for their freshman year. August would be a junior this year if things had gone as planned. I can’t even get him to complete his GED. He doesn’t see the point. I continue to ask and prod because that’s what parents do but I also know that it’s not my choice to make and if he doesn’t see the value nothing I say is going to matter. I have been thinking much about the future recently because I am considering the future of this blog. The last few months have been very cathartic. I started writing at a time that I needed to write for me. And if anyone found it helpful that was fine but it really didn’t matter. I needed to write. And it served its purpose. But over the years since August has been diagnosed I have had people tell me I should do this or that I should be a therapist for others who are dealing with similar situations. My experiences with law enforcement and the school system have shown much need for educating about children with RAD and I always imagined finding a way to work with these groups. So here’s the deal. Going forward I will still be telling my stories but I am going to fold this blog into a website designed for other families and anyone who is involved with a child with reactive attachment disorder. My vision is to create a community of resources for parents, teachers, law enforcement, extended families and others. There would be advice from professionals as well as hands-on tools that families can use. I have seen other blogs that are for home-schooled children or children with special needs that are mostly medical but I really want to focus on RAD because it is so very different from medical issues and from any other mental health issue and still so unknown. And that’s my plan for the future. If you’d like to be a part of it here’s how you can help. Please subscribe to my blog if you currently just read it off of Facebook or LinkedIn. I don’t want to bore you with the details but it helps. Please share it! You may not know anyone with a child with RAD but someone you may know might. If you are a praying type, always welcome. I hope you’ll stay tuned to see what my future holds as well as August’s.

    Map out your future-but do it in pencil. The road ahead is as long as you make it. Make it worth the trip.

    -Jon Bon Jovi

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    What comes out of that mouth…

    Warning: Some of the following uses some colorful language. Apologies to those with sensitive ears/eyes. You have a small child who has a chubby little face with a precious smile and kissable cheeks. At this stage you don’t know what the future holds and occasionally you’re getting kisses from this button mouth and he’s funny and curious and charming. 12107036_10209179370107980_3794553278057878597_n Fast forward a few years and you’re sitting in a restaurant in Hollywood, CA where you’ve paid a lot of money to go and you’re trying to have a special moment and you get this: 10550373_10204464359515662_1887139728_o Much of it is normal sullen teenager but changes have started happening that are not what you expected. There is rage. There is hatred. He’s on medications that treat the symptoms but the cause lives in his body like a parasite you cannot kill. And words come out of him sometimes like he is possessed. And you wish that he was because then you could blame the devil inside him and not the sweet boy you wish he still was who is now saying he hates you. When August first got diagnosed I thought, “If I’d just never put him on the school bus…” He learned a lot of his colorful language there. His father and I were very careful not to curse in the house though as his RAD emerged that got harder and harder! When he would be raging and want to push our buttons he would just say, “shit, shit shit” over and over again. That’s when I learned from his psychiatrist that putting soap in a child’s mouth isn’t appropriate any more. As I have mentioned in past blogs we did as much harm as we did good early on in learning about RAD and how to parent August effectively but in that instance it was the only thing that made it stop. This was when he was maybe 10. He went on to use many more curse words but for some reason early on that was his favorite. He seemed to like the sound of it best. As an adoptive parent you fear hearing your child say, “You’re not my real mom.” It’s like a dagger to the heart. Children have the ability to fill you with more love than you ever thought possible and also take it away in one breath. With August, for better or worse, that became one of the least horrible things he said. He talked in his middle school years about killing us, killing himself, wishing we were dead, all of which prompted his placement in the residential treatment center in Missouri. When we got ready to leave, I hoped for a tearful goodbye to show some signs of attachment and he was able to provide another kick in the gut with, “If you’re not going to take me with you then just leave.” As a high-school age man-child he felt entitled to use all the curse words he knew. Which were plenty. “Fuck” became a punctuation mark, an adjective, a exclamation, you name it. He didn’t care that it upset me, that only made it more fun. He didn’t care about using it at school or with the police. That adorable face became unrecognizable to me whenever it spoke because it spewed hatred-filled, awful words. He manipulated and threatened and spoke with no feeling in his voice at all. But you could feel all the hurt in every word that came out of his mouth. All the pain he didn’t know how to process. All the loss and anger he feels and doesn’t know what to do with. It’s all in there trying to find an outlet and he is trying with every horrible word to control it. Not letting anyone else help him and making it worse every time he pushes someone away with the hurtful things he says. Since he’s been in prison much of that has not changed. He’s tried some amazing cons on his father and I to get money. When we don’t fall for them the tirades are pretty amazing but at least now I can hang up the phone. But more often there are these pleasant, calm phone calls. He asks me first what I’m doing and how I am. We talk about books and movies and my garden and my job. We talk about the family. When we visit together we talk about the past and things we used to do. He tells me about things that happened when he was living on the streets that both scare me to death and break my heart. Both of the phone calls and the in-person visits end with his saying “I love you” first. With a tone that says he means it. Hard to know for sure but I think so. I’ll take it.        ]]>

    Finally, A Visit!

    “It is said that no one truly knows a nation until one has been inside its jails. A nation should not be judged by how it treats its highest citizens, but its lowest ones.” –Nelson Mandela

    There are many different combinations of people visiting. Some are obvious; boyfriends/husbands and girlfriends/wives, parents/sons, families and fathers. It is both heartwarming and heartbreaking to see children visiting their fathers here. They have pictures on the wall obviously drawn by children who have visited and there are murals painted all around to make the place seem less sad. Nothing about the faces or demeanors of the people seem hopeless or tragic. Everyone has on their, “Everything will be OK” looks. August finally walks in. He’s wearing a khaki jumpsuit. He’s always been skinny and other than a few more tattoos he looks basically the same. The hug feels great. We sit down and chat. It’s not really awkward because we talk all the time. But it’s slightly weird. We haven’t been in the same room in almost 1 1/2 years other than a courtroom. He’s recently gotten a tattoo on his neck-a cross in the middle with a devil on one side and an angel on the other. The angel is naked. I guess if your son is going to have an angel tattoo on his neck it’s good that she has a nice rack. I try to talk about important things. He tries to listen. I try to get him to think about his life. He tries to say the right answers. What he thinks I want to hear. We keep things civil. I hope that these visits will propel him to want to get out and do the things he needs to do to make that happen. He has come into the visit having to go to the bathroom so the visit gets cut short because as soon as he gets up the visit is over. We are together about an hour and a half and it is glorious. As horrible as so much of parenting him has been, I miss him every day. I miss seeing his face and his smile. I miss going to movies with him and when he liked to help me with things. They were such brief moments but they were glimpses of who he could be. I get to go every two weeks will be so helpful for me and I hope for him. Again, not a place I ever thought I’d be. Amazing the lives we find ourselves living.  ]]>

    Mother's Day

    And all I was told was, “Something happened.” I was afraid to go downstairs. But there were three yogurts and the three of us laid in bed and ate yogurt together and had a great breakfast. It was wonderful. Of course I did have to go downstairs eventually and I found this: 229674_1999357910235_610622_n But the fact that they tried this hard made my heart melt even more. August will never understand how much Mother’s Day means to me. That for seven years I didn’t think I’d ever be a mother. That getting the call with his court date the week before Mother’s Day in 2001 (and finding out I was pregnant two days later) was the most amazing 48 hours of my life. I wish he could feel how full my heart is when I think about being his mom. And how much it breaks that he can’t. If he could I know his life would be so much different. Mother’s Day is a time for celebrating our mothers, or those who have served that role. Remembering the mothers we’ve lost and acknowledging what a vital role mothers play in the development of every human. Understanding Reactive Attachment Disorder brings the role of mother to a whole new level of importance now for me. I have been robbed of much of that bond with my child but nevertheless I would not be a mother without him and for that I am truly blessed. Happy Mother’s Day to all the mothers and mother souls out there. Thank you for caring.]]>

    Nature vs. Nurture

    But I digress. So the boys are almost four years apart in age. And arriving so close in time we didn’t know much how to parent either one of them. But we felt like we did things pretty much the same with each one and August hadn’t been identified as RAD yet. We didn’t know we were going to need to parent him differently. Of course they had different interests. But we read books to both, sang songs at night, said a prayer at dinner time, went to church, tried to carve out time for each of them individually. August was always more independent. When he was three and four years old he could leave his bed at night in total darkness and roam the house with no fear. He’d fall asleep wherever he got sleepy and we’d be terrified trying to find him under the guest bed or behind the living room couch or wherever he landed. He could sneak down into the kitchen and get food and take it back to his room without us ever hearing him. The food hoarding started way back then. His brother went to bed and never woke up. As the RAD behaviors started to emerge we probably made a lot of mistakes in how we addressed them. Hours and hours trying to calm August’s rage and keep him from hurting himself or us. A lot of it including us yelling too. A lot of time with him in his room and learning later that separating him from us was the worst thing to do. And then all the time we were spending trying to help him. Teacher meetings and psychiatrists and counselors and extra time with him doing homework and taking him to tutors. All the time this was happening his brother was also growing up. And everything came so easy to him. He was smart, gentle, easy-going. He had several interests which we were able to fit in. He was fine being alone and developed a love for reading. When I had to spend hours dealing with August’s rages, he could occupy his time. I felt terribly guilty about what having a child like August who required so much of my time and who created so much chaos in the house was doing to him. So fast-forward. It’s 10 years later. I continued to raise two sons with the same love and caring. As I learned about RAD I did parent them differently, understanding what would work for August. They both dealt with the end of my marriage and seemed to handle it much the same. I moved to Indiana, away from both of them, something I hated doing, but needed to do. I have already talked about August’s path. School never worked for him. IEPs and homeschooling and constant behavior issues and run-ins with the law. A residential treatment program then more arrests and eventually his current time now in prison. And his brother has been in advanced classes, won awards, starred in school productions. Doesn’t need to be told to do homework, overachieves on projects, goes to a gifted and talented high school and will graduate with almost a year’s worth of college credits. Two children, raised identically except for the first three years. Given all the love and caring and opportunity two parents can give. And even when problems arose, all efforts were made to help and heal. August’s brain was altered before we ever met him. The abuse and neglect of his first three years had set his course. And while he could have healed and overcome his demons (and still can), the psychiatrist that diagnosed him said that the angst and discomfort that bonding feelings cause makes the RAD child fight like crazy against it. So it seems that I was waging an uphill battle against nature with August. I don’t know if I did everything right (probably not). It seems to have helped with his brother (or maybe that’s in spite of me!) I hope I’m not out of time. I love both my boys so very much. 10306234_10203907719320005_801684289185291184_n]]>

    Happy Birthday August!

  • I wish he finds the smile he had when he was little
  • I wish he learns the value of education
  • I wish he comes to realize how incredible and valuable he is
  • I wish he decides to face his demons and heal from his trauma
  • I wish he learns to build relationships built on trust and respect not manipulation
  • I wish he stays safe
  • I wish he has many more happy, healthy birthdays
  • [gallery ids="36,37,38,39,40" type="rectangular"] Happy birthday my sweet, sweet boy. Mommy loves you so much.  ]]>